Participating Sites:

The following sites are now active and are able to enroll participants into the study:

• University of Alabama at Birmingham, Birmingham, AL
  • Contact: Jane Lane
  • Phone: 205-934-1130
  • Email: jlane@uab.edu
• Greenwood Genetic Center, Greenwood, SC
  • Contact: Fran Annese
  • Phone: 864-941-8100
  • Email: fran@ggc.org
• Boston Children’s Hospital, Boston, MA
  • Contact: Lindsay Swanson
  • Phone: 617-355-5230
  • Email: RettResearch@childrens.harvard.edu
• Baylor College of Medicine, Houston, TX
  • Contact: Aryn Knight
  • Phone: 832-822-3751
  • Email: axknight@texaschildrens.org
• Rush University Medical Center, Chicago, IL
  • Contact: Anna DeSonia
  • Phone: 312-563-6636
  • Email: Anna_M_DeSonia@rush.edu
• Vanderbilt University, Nashville, TN
  • Contact: Dawn Lischke-Redmond
  • Phone: 615-875-9311
  • Email: dawn.m.lischke-redmond@vanderbilt.edu
• UCSF Benioff Children’s Hospital Oakland, CA
  • Contact: Erica Robertson
  • Phone: 925-979-4055
  • Email: ERobertson@mail.cho.org
• Gillette Children’s Specialty Healthcare, St. Paul, MN
  • Contact: Briana Person
  • Phone: 651-229-1770
  • Email: BrianaMPerson@gillettechildrens.com
• Children’s Hospital Colorado, Aurora, CO
  • Contact: Nanastasia Welnick
  • Phone: 720-777-8608
  • Email: Nanastasia.Welnick@childrenscolorado.org
  • Contact: Megan Straley
  • Phone: 720-777-8008
  • Email: Megan.Straley@childrenscolorado.org
• Children’s Hospital of Philadelphia, Philadelphia, PA
  • Contact: Margaret O’Brien
  • Phone: 215-590-3057
  • Email: Obrienm7@email.chop.edu

The following sites are currently preparing submissions to their individual Institutional Review Boards and can begin recruiting participants once this process is complete, which can take from weeks to months. As they receive approval to conduct the study, and can begin discussing enrollment, we will provide their contact details.

• University of California, San Diego, CA
• Cincinnati Children’s Hospital Medical Center, Cincinnati, OH